Scans and the long wait
Patient forum · 4 threads
Follow-up MRIs, slow results, and the months in between.
Radiosurgery is unusual among treatments in that you leave the hospital with nothing visibly changed, then wait months, sometimes years, to learn whether it worked. That wait, and the follow-up MRIs that punctuate it, generate more posts on this board than the treatment itself.
- 12 month MRI says "increased in size compared with prior". First scan was FINE. How is bigger ever not the bad news? 5 replies · 420 views · last by petehiker, Jul 8, 2026
- How many YEARS do these follow-up scans go on for? My next one is 2 years away and that gap terrifies me 4 replies · 280 views · last by petehiker, Jul 1, 2026
- Meningioma grew 2mm and now they're offering Gamma Knife OR surgery and asking ME to choose. How do they normally decide? 5 replies · 340 views · last by dianew60, May 21, 2026
- First follow-up MRI report just says "stable, no change". Six months of waiting for THAT? 4 replies · 390 views · last by Mr Edward Halloran, Jan 12, 2026
Themes in the waiting threads
The word that trips people up most often is "stable". Readers arrive expecting shrinkage and read a report that says no change, and the threads here keep having to repeat that for many benign tumours, stable at the first scan IS the treatment doing its job. The site's guide to results and follow-up after Gamma Knife sets out the typical timelines target by target, and it is worth reading before your first report rather than after.
Scan week has its own vocabulary in these threads: sleepless nights before the MRI, obsessive re-reading of the report afterwards, and the slow discovery that the anxiety shrinks with each cycle even when the tumour is slower about it. There is a whole guide on coping with scanxiety built from exactly these experiences.
What no thread can do is interpret your report. Two readers with identical wording can be in very different situations, so the radiologist's comparison and your own team's reading are the only ones that count.