Patient forum
A small board for people who have had stereotactic radiosurgery and people still waiting for their date. The frame, the treatment morning, and the long stretch of follow-up scans all get talked through here in patients' own words. Nothing posted is medical guidance, and threads lock automatically two months after the last reply.
The day in the frame
Frame fittings, the hours on the couch, and getting home after.- What did you actually pack for treatment day? My bag is full of things I suspect I do not need 5 replies · 320 views · last by dianew60, Aug 6, 2026
- Having Gamma Knife for tremor and I keep thinking, how do I hold STILL in the frame when my hands shake all day? 5 replies · 400 views · last by petehiker, Jul 14, 2026
- Getting Gamma Knife with a MASK instead of the frame. Is the mask less accurate, or am I getting the budget version? 6 replies · 380 views · last by gwen1962, Jul 10, 2026
- Badly claustrophobic and the planning MRI is with the frame already on. How do people get through it? 6 replies · 380 views · last by petehiker, Jul 7, 2026
- Do they shave your head for this? Nobody has mentioned my hair once and I am too embarrassed to ask 5 replies · 460 views · last by dianew60, Jun 27, 2026
- Frame goes on next Tuesday and I cannot stop thinking about the pins. Talk me down? 5 replies · 540 views · last by gwen1962, Jun 2, 2026
Scans and the long wait
Follow-up MRIs, slow results, and the months in between.- Consent form mentioned a second treatment if the pain comes back. Has anyone actually had Gamma Knife twice? 5 replies · 350 views · last by gwen1962, Aug 28, 2026
- 12 month MRI says "increased in size compared with prior". First scan was FINE. How is bigger ever not the bad news? 5 replies · 420 views · last by petehiker, Jul 8, 2026
- How many YEARS do these follow-up scans go on for? My next one is 2 years away and that gap terrifies me 4 replies · 280 views · last by petehiker, Jul 1, 2026
- Four months on and I am still wiped out by three in the afternoon. Is this still the treatment or is it just me? 6 replies · 300 views · last by Susan K., May 26, 2026
- Meningioma grew 2mm and now they're offering Gamma Knife OR surgery and asking ME to choose. How do they normally decide? 5 replies · 340 views · last by dianew60, May 21, 2026
- First follow-up MRI report just says "stable, no change". Six months of waiting for THAT? 4 replies · 390 views · last by Mr Edward Halloran, Jan 12, 2026